The family of an unborn baby who died after being diagnosed with a tumour on his kidney are preparing for his funeral.
The child’s parents, Lisa Tilbury and Blake Carrington, launched a fundraising appeal for specialist treatment in the United States after receiving the devastating news at the 20-week scan.
But at a check-up last week, doctors discovered that the baby’s heart had stopped.
Aaron Alexander Norman Carrington was delivered at St John’s Hospital in Livingston on Sunday evening, weighing exactly 1lb.
His parents – who had tried to stay optimistic despite the child being given a one per cent chance of survival – are preparing for his funeral. However, that may not be for another fortnight to allow doctors at Edinburgh Royal Infirmary to run tests and shed light on his condition.
Aaron’s body could be kept at the hospital for up to a week, and test results will take around six weeks.
Funeral director Brodie’s has been liaising with the family in Bathgate to start making arrangements.
Miss Tilbury, 22, said: “I started crying when Aaron arrived. When they cleaned him up and put a set of clothes on him to cover his body, I broke down. Blake was there the whole time.
“Aaron had his hand on his chest and the other was on his belly when he arrived. It was like he was hugging himself.
“They said it could take up to a week [for tests] but they are not absolutely sure.”
She said she was not sure if the news had sunk in for her three-year-old daughter, Amy, who has been staying with her father, Steven Cessford, at Galashiels for the past few days.
Miss Tilbury, who was just over six months pregnant when she delivered Aaron, said: “I don’t think Amy’s really herself. She isn’t really speaking much. She was excited about having a little brother or sister.”
The family, which is planning a small funeral, is putting together a memory box of keepsakes of Aaron.
Helen Carrington, Blake’s mum, said: “His wee eyes, his nose, for the size of the baby you can see his features on his face, his hands and feet, everything. We have taken a lot of photos. Blake always wanted a wee boy, he liked the name Aaron.”
The baby’s middle names are after Mr Carrington’s grandfather and Miss Tilbury’s grandfather respectively.
Mrs Carrington added: “His funeral will be in Bathgate. We want to get him into the baby cemetery in Bathgate there.”
The family launched the Baby Carrington: Our Little Braveheart appeal when they first heard that little Aaron had a tumour.
They have cancelled all fundraising events except for a disco at the Glenmavis Tavern, Bathgate, on April 11, which will be in Aaron’s memory.