Nicola Sturgeon rejects Edinburgh teen's plea for disabled brother’s cannabis treatment

Watch more of our videos on ShotsTV.com 
and on Freeview 262 or Freely 565
Visit Shots! now
Nicola Sturgeon has dismissed a teen’s heartfelt plea for his disabled brother to receive potentially life-changing cannabis oil treatment.

Let us know what you think and join the conversation at the bottom of this article.

Dean Gray delivered a heartfelt letter to Bute House asking the First Minister to help fund cannabis oil medical treatment for his brother Murray, who has a complex form of epilepsy.

Hide Ad
Hide Ad

But the 13-year-old schoolboy was crushed by Sturgeon's response which said “stronger evidence” is needed before the Scottish Government can offer financial support.

The teenager said it was unfair his parents have to fork more than a thousand pounds each month to keep his brother healthy.The teenager said it was unfair his parents have to fork more than a thousand pounds each month to keep his brother healthy.
The teenager said it was unfair his parents have to fork more than a thousand pounds each month to keep his brother healthy.

Sturgeon went on to say that she was “deeply sorry” for the difficulties Dean Gray and his family are facing and has asked the government’s Chief Pharmaceutical Officer to explore alternative avenues of support.

Dean’s mum Karen Gray, 47, said the family has already explored every option to control her son Murray Gray’s seizures which are caused by his rare and complex form of epilepsy.

Hide Ad
Hide Ad

The only effective treatment is Bedrolite, a cannabis oil from the Netherlands, which eight-year-old Murray has been taking for two years.

The treatment has completely stopped the young boy’s seizures, before taking the oil Murray would have up to a hundred seizures a day.

Karen Gray, 47, needs financial backing from the government to keep her son seizure free.Karen Gray, 47, needs financial backing from the government to keep her son seizure free.
Karen Gray, 47, needs financial backing from the government to keep her son seizure free.

The medication costs £1,300 each month and the Gray family, who must foot the bill themselves, are running out of money.

Hide Ad
Hide Ad

In his letter to the First Minister, Dean begged for financial aid and said it is not fair that his parents have to spend so much money on medicine that the government has agreed is safe and legal for use in the UK.

Dean is “very disappointed” with the First Minister’s response and the family are still holding out hope that she will change her mind.

“I am grateful that the First Minister wrote back, however, I am infuriated that nothing is being done to help and Dean is feeling very disappointed,” said Ms Gray.

Hide Ad
Hide Ad
Big brother Dean Gray, 13 said he can see how the cannabis oil is improving his eight-year-old brother Murray Gray’s life.Big brother Dean Gray, 13 said he can see how the cannabis oil is improving his eight-year-old brother Murray Gray’s life.
Big brother Dean Gray, 13 said he can see how the cannabis oil is improving his eight-year-old brother Murray Gray’s life.

I am devastated that Ms Sturgeon appears to have either not understood the letter from Murray’s brother Dean or has understood the issues but decided not to act.

“Mrs Sturgeon raises the issue of safety but three children in the UK already have an NHS prescription. If such a prescription is safe in those cases surely it would be safe for Murray.

“I’m going to write back to the First Minister to explain that Murray already has a specialist clinician writing Murray’s prescription. She is a private paediatric neurologist in London. It it wasn’t safe she wouldn’t prescribe it.”

Hide Ad
Hide Ad

“The government must step in”

Murray’s standard of life has improved dramatically since receiving cannabis oil. He can: “run about and play like a normal wee boy now,” says mum.Murray’s standard of life has improved dramatically since receiving cannabis oil. He can: “run about and play like a normal wee boy now,” says mum.
Murray’s standard of life has improved dramatically since receiving cannabis oil. He can: “run about and play like a normal wee boy now,” says mum.

Dean’s letter was delivered to Bute House on June 16 coinciding with the three year anniversary of the first long term licence to use medical cannabis in the UK.

In June 2018 the then UK home secretary Sajid Javid granted Alfie Dingley the first individual long term licence to use medical cannabis in the UK.

Today, three children in the UK have NHS prescriptions for medical cannabis and the Gray family has asked the First Minister to reconsider the request and provide Murray with a similar prescription.

Hide Ad
Hide Ad

Local MSP and Scottish Liberal Democrat health spokesperson Alex Cole-Hamilton has previously urged the government to pay for Murray’s medical fees.

He said: "The Government must step in and cover the cost of private prescriptions that many people like Karen are currently having to cover themselves."

A message from the Editor:

Thank you for reading this article. We're more reliant on your support than ever as the shift in consumer habits brought about by Coronavirus impacts our advertisers.

If you haven't already, please consider supporting our trusted, fact-checked journalism by taking out a digital subscription.

Comment Guidelines

National World encourages reader discussion on our stories. User feedback, insights and back-and-forth exchanges add a rich layer of context to reporting. Please review our Community Guidelines before commenting.